Thank fuck for the NHS!

I really should have written this Monday night but my head was still trying to get around the events of the day,  I have actually written down the whole time scale on a notepad because of the complaint we are putting in, and now I am going to write it down here so if I lose the pad I have it,

So Monday started like any other Monday, boys get up and ready for school, Ali has some muesli for breakfast, leaves the house at 8.20am to walk to school,
At 8.46am I get a call from the school asking if I have their permission for Ali to use his inhaler again as he has already had two puffs and is still bad, he had, a bad asthma attack walking to school, and could I get up there please asap.
So shout yes, of course, give him the inhaler let him use as much as he needs, and will be there in ten mins. I get to the school and am taken to the office straight away where Ali is sitting with his hands and feet in a bowl of water and a damp cloth on his forehead struggling to breathe.  they explain that he was almost at the school when one of the mums noticed he was struggling to breathe standing still and coughing so she helped him into the school.  I take one look at him and said I would take him to the local cottage hospital,  which is about five mins away and a minor injuries unit really but does have a nebuliser there as well and we have been on a few occasions and the waiting time is a lot less than the usual A & E main hospital about 17 miles away. so I get to our local cottage hospital and they take one look at him at reception and run off to get a wheelchair and get him to a room to be seen asap, Ali feels sick so being next to the disabled loo he goes in there and throws up,  The put him in the wheelchair and the receptionist runs him around to the nurse while I limp along behind. by the time I get to the room, he is on the nebuliser, they have taken his temp and he is tachycardic and covered in this rash from head to toe, the nurse calls 999 and asks for a paramedic asap,  it took them 3 and a half mins to get to the hospital, in the car, they look at Ali and give him an injection of  Epinephrine and a Hydrocortisone shot, and hook him up to what the guy joked and called his MOT tester, *12-lead electrocardiogram * He had a very weak pulse and rapid heart beat, once they had got him sorted they gave him another adrenalin shot, Epinephrine and called for an Ambulance to take him to A & E,  I’m sitting there and Ali is mumbling so they take off his mask and he in between trying to breathe asks if I can take his picture to show his friends.  this is normal for Ali, he loves his hospital pictures
lol  so they put the mask back on and I take his pic, the paramedic ask’s if I can take a picture of the rash as well so they can compare it to when he gets to the hospital to see if it is getting worse or not. so I take a picture of the rash, it is now 10.14am, they then load him into the ambulance while I get my car to follow them to the hospital,  they drive off with the sirens and lights flashing and I try to follow as close behind as I can, typically I get stuck behind loads of lights changing.  on my way to the hospital, I call my husband and explain what’s happening.  *yes I have a phone cradle and hands-free kit* and tell him not to worry about leaving work and I will phone him when I know more.  I get to the hospital and not one parking space so I have to queue up to get a space, by the time I get in to see him the paramedics are just taking off all the leads and I take another picture, by this time he doesn’t look as ill and I thought it would be a better picture than the one I took earlier because he looked like death in that one and I didn’t think it would be suitable for his show and tell at school, anyway the paramedic said he was a very lucky boy and that if I had decided to take him straight to A & E myself he may not have made it as he had Anaphylaxis which they say triggered his asthma given him the bad attack and caused the really high temp, vomiting, very weak pulse, rapid heart beat, rash etc, I said my thanks and they said their goodbye’s to Ali who was starting to feel a bit better by now.  his temp was back to normal, he was off the nebuliser although still feeling a bit sick, and the rash was going down, it wasn’t as red, so the hospital kept him under observation for three hours,  then a new doctor came in……. and this is what brings me to the putting in a complaint part,  This Dr was the rudest most obnoxious person going, she was asking Ali questions and he didn’t understand her accent (Indian??) and when he said he couldn’t understand she actually snapped and said don’t you speak English. At which point I lost it and said yes and better than you I also explained he is autistic doesn’t talk to people he doesn’t know and is finding the whole thing scary enough without her shouting at him, that’s when we got told if he is still the same in half an hour we can go home as no point in wasting their time doing any tests to see what has caused it as it could be anything, in fact, according to her he didn’t look ill at all and demanded to know why he had been brought to her A & E from another hospital, I explained it was just a cottage hospital and that was the paramedics decision, anyway she stormed out in a huff,  the nurses outside the door heard her, what she said and the tone she said it in and told me to put in a complaint, apparently this was not the first time she had treated patients like that.  it is now 3.30pm, he is discharged and we get home.  Ali goes straight to sleep and wakes up at about 7 pm, hungry and back to normal.
I have made a formal complaint, and also an appointment with our GP to discuss tests to see what caused this severe allergic reaction, as the paramedic had said the next time might be even worse.  the problem is we have no idea what triggered it in the first place.
Anyway the good news is so far he seem’s fine although I have been driving him to his sisters and he walks from there so he doesn’t have to walk through the grassed area in case it was something airborne, but there was also another reason for me doing the run as well, but that is a whole other blog post! 
PicMonkey Collage

Bugger the Aircast boot stays on :(

Today I had my appointment at the fracture clinic, I was convinced that they would say that I didn’t need it anymore but just not to over do it as it was still uncomfortable walking any distance with the boot on and my foot ached more than hurt.

Well that didn’t go how I wanted, the two hairline fractures are healing,  but the bone that a clean break all the way through still has a gap of about 7mm, so instead of having the air cast boot they wanted to put full cast on, but after a long discussion and promising to keep the boot on as I usually take it off indoors while I’m sitting, I convinced them to let me kept the boot on. next check up is in August and xrays again if still not healed it may be surgery and have it pinned. So still a hop along lol

My next check up is in August and need to have x-rays again if it’s still not healed it may be surgery and have it pinned. Bugger not liking the sound of that……
I really don’t relish the idea of wearing this boot all through the hot months of June, July and August but on the plus side, unlike the cast I can take it off for a while. 
So for the meantime………. 
I am still hop along. 

For those who have no idea what an Air cast boot is here is one.. this is used instead of a plaster cast.

For those who have no idea what an Air cast boot is here is one.. this is used instead of a plaster cast.

Whats Happening?

Well Not a lot to be honest……….. Allan has been working especially at weekends so we haven’t really been out and about much…….

Alex has got the cooking bug so at least three times a week he is cooking dinner………… 

We got the results of the Kent Test (11 plus) he took back in September….  and he passed  but has changed his mind about going to the grammar school, well we hope he has…….. I haven’t put it on the preferences for senior school choice but there again I’m not holding my breath for the school I do want him to go to as I want him to go to Westlands, Yes I know its had some bad press but at the end of the day its had excellent ofsted reports. I know the school, it has been kept up with the times and looks clean and modern in comparison to the grammar school which doesn’t look like its had a coat of paint since my oldest went there to look around.  but I have been told that westlands have an intake priority to get in..
1.  Local Authority
2. Siblings
3. Regis Manor
4. Westlands Primary
5. Maths Aptitude test….. (sadly Alex’s worst subject)
6 surrounding villages such as Iwade, and Newington
And then
7. Other areas and applicants……
And although it’s the closest senior school to us oddly we don’t fall under the catchment area… that is for Fulston Manor..
I know I have the right to appeal but I have a feeling its going to be a battle…..

We will have to wait and see now until March.

Its getting close to the end of term now and I can tell, the boys are getting tired… unfortunately we are not going to be able to go and do much over the holidays as I have to take my dad up to London to St Thomas Hospital on Monday  for  more cardio appointments…….. I’m hoping that I can go for a walk across westminster bridge and around the houses of parliament while dad is in the hospital.    Tuesday I  have to take Ali to his asthma consultant appointment at Medway hospital,  Wednesday is Alex’s doctors appointment… Thursday Ali opticians and take the old man shopping and I’m sure there was something I had to do Friday…..  Hopefully we will be able to take the boys somewhere.. or at least I will..  otherwise its going to be a very boring half term.

Other than that . Not a lot going on at the moment…….

Hate this time of year after a busy summer………… I’m busy because I’m doing my courses……. I’m now teaching on a Friday with Adults instead of children……..  So much better as I wasn’t keen on the idea of working with kids……….  Mine I tolerate…everyone else’s I can’t stand 😉 (joke) I think………….   We have stopped the cardboard collecting and to be honest there is a rather nasty atmosphere at the scouts at the moment I will go into more detail when I find out what’s going on but lets just say after we have given it our all for the last two years we are feeling rather peeved at the moment.. I have kept away and Allan just goes on a Thursday as assistant cub leader……. 

Time will tell if my theory is right………..

Willies Willies and Fucking Willies, or Not as the case may be lol

Seriously if it wasn’t bad enough with my dad and his water works problems and having to have a catheter put in, taken off, put in, taken off and again today put back in again. 
Today I spent yet another day at the hospital from 7am when we got there and they took that catheter out until gone 4pm when yes it was put back in again because my dad cant pee. 
Now after said device had been fitted yet again the nurse asked me to have a chat.  She explained that there is no physical reason why he can’t pee on his own, they have done every test in the book and bladder scans.   She personally thinks because he is on water pills because of his heart which left him in a place where he was peeing constantly and on several occasions had the odd accident (generally because he couldn’t be bothered to go) she thinks that he actually prefers having the catheter fitted as its easier for him,  Yes it’s that easy that he even forgets to empty the damn thing and has had the odd accident that way as well.

A Catheter bag hitting overflow in Asda’s is not the thing you want to see…… In fact the only way I can describe it is …  A woman in labour and her waters going… 
That was no woman that was my father………. 

Personally I think he is forgetting as I swear he is getting more and more senile.  I can tell him something like I will be half an hour late coming around this evening as I have to take the boys to a party, or something and within 5 mins of me being late I will be getting calls on my mobile asking where I am?  Or I will tell him like I had yesterday that I had to take Allan to the hospital to the same department and wont be able to pop around in the day but I had arranged for the district nurse to come out to change his bag.  We get back and there are 22 calls on the phone……….  asking… No demanding to know where I am and why I haven’t popped around, and then another one saying a district nurse popped round by chance…
Arrrggghhh..  I have pointed out his short-term memory loss and been told in no uncertain terms I have no idea what I am talking about and he is fine!

The thing is he has never had problems before until the day after his op, If you have no idea what I’m on about you have to back track to the link below.

A week later! Some things can never be unseen!

Anyway as I was saying … Today I was at the hospital all day because on one persons Willie related problems and yesterday I was there with Allan.  Why ??

Allan also has problems.

 I had to take Allan up to Medway Hospital because he has had pain in his kidneys and has had a stinging sensation and peeing blood. :/  so he got a fast track appointment to have a camera poked yep in his Willie and of course that prostrate examination, you know the kind… the one where he really should have at least asked her name first……

I had lived my whole life without seeing a prostrate examination in person and to be honest I could quite happily have carried on in my ignorance… Now I have seen not one person but two have one in the space of a month.

Of course.  He also had to have a camera poked in places no man would ever want… lets just say it stings a lot more when he pee’s now than it did before he went to the hospital.
Again……….  There are some things I would rather not have seen………

Thankfully there was nothing untoward spotted and it was as I had suggested to Allan it may have been… A kidney infection so Man Up…….
I bet he wishes he had now lol

Sadly my dads dilemma will carry on as he has been much to his disgust refereed to another clinic to try and get him used to going without his golden bag. Which means of course that I will be driving him around for the near future… Actually probably forever because I somehow have a feeling that the DVLA are going to be reluctant to give him back his driving licence. 

Wow didn’t see that coming.

Today is my dad’s 80th Birthday!

Yesterday when we popped around my dads when we were out in the van collecting cardboard  he played me a message on his answer-phone that he had received in the morning while he was out up the shop.  The message was from the doctor at the hospital in the cardiac unit  asking him to attend an appointment up Medway hospital at 12 pm today.
No explanation what was wrong or what it was about just that he had made an appointment and for him to be there.

So Allan goes out in the van on his own (we both usually go ) to do the scout cardboard collections and I drive my dad to Medway Hospital. We get there expecting to discuss the results of an ECG he had last week over a 24hr period when he wore it at home and we dropped it back to the hospital on Wednesday night. 
Well we see the doctor and he says the my dad will benefit from a pacemaker. Ok fine expecting to be told about waiting lists ect . I ask so what happens now? 
And the doctor says he needs to operate as my dads heart is running slow which is bad and can cause a heart attack but it also has times when it races which is really bad and can cause instant death. The muscles are also weak both sides so he needs that fixing and then he needs a pacemaker that deals with both sides but also has a defibrillator built-in so if his heart races and stops he gets a kick start.

He then said he has cleared his surgery tomorrow afternoon and can we come back at 2pm and he will do the open heart surgery at 3pm . WTF? 
Dad has to stay in after op and then when he comes home he can’t drive for a month but if the defibrillator kicks in he can’t drive for 6 months .
Wow not how I expected today to turn out!

To say I am slightly worried is an understatement!

A Week

A few weeks ago well,  Tuesday I watched my youngest child close to death.

To the point he was in Resus in A and E at the hospital before being admitted to HDU.

  The next week he was back at school (he went back last Monday but couldn’t play out or do PE for a week,)

He is now back to laughing, giggling, arguing and being stroppy with his brother.

Ok he is on some serious steroids and other medication at the moment. And like me will have to use a preventer inhaler possibly for the rest of his life.

But you know what I am so proud of him.

He took everything in his stride, He did what the doctors asked of him, ok he didn’t talk back to them and very rarely he even gave eye contact but we had no refusals of anything, we had no total meltdowns in the hospital.  For a child who thrives off routine and anything else causes major problems, He was a star.
Yes I know he was too ill at first to object to anything but even the day they let him out and wanted to run a few last tests he was a star.

Today he is back at school and hopefully back to normal.  he can go out for playtime, he can do PE and he is arguing with his brother………..

Normal services have been resumed!

In every 24 hours things can change from good to bad to good again!

Monday:
A normal school day for both boys in fact after all the rain we have had it was quite nice and mild so we thought we would get the boys from school wrap them up warm and go straight to the country park for a walk as we are on the “friends of the park” committee” We went home, usual stuff,  have dinner and after some time on the pc or laptops the boys go to bed ready for school.

Ali in very good spirits

Ali in very good spirits

Tuesday:

My youngest Ali  had a bit of a cough in the night, Nothing really worrying but we put some vapour rub on his chest and he went back to sleep, Tuesday morning when he got up he says his back hurt and he had a bit of a snotty nose so as both he and I were going on a school trip on Wednesday I decided to keep him off school so he would be ok for the trip, 
During the morning he perked up a bit and even had some sausages in a bap, in fact I kind of felt a fraud for keeping him off school, by dinner time he hardly touched his dinner and then went back on the laptop. Allan had a cub leaders meeting up at the scout hall in bexon lane so he left about 7pm within about half an hour Ali’s breathing got a bit heavy so I gave him his inhaler, It helped a little and he said he was tired so instead of putting him to bed upstairs  I pulled the sleep sofa out and told him to rest there propped up instead. 
By the time Alex had gone to bed  Ali’s breathing was getting worse and worse.. I was just about to call Allan to come home from his cub meeting when he came through the door.
By now its about 9.15pm, now you can tell how long it is since I have called the doctors out of hours because I had to look up online and found out that the local memorial hospital closes at 9pm and after that the out of hours service finishes and you now call 111 instead of NHS Direct.
 So I called 111 and a paramedic came. checked Ali over and said he had a very  high temperature & was Tachycardic now, because of the strain of trying to breathe and that it was serious. he put him straight on a nebulizer and called for the “Van with noise and lights”  they asked if there were any other children in the house so we told them that Alex was in bed so while I waited for Amber to get in to watch Alex, Allan went in the ambulance with Ali and the paramedic who first came as he wouldn’t leave Ali.. he even left his car outside and was going to get a lift back later on with the ambulance crew.

Once Amber arrived I drove up to Medway hospital and Ali was in A & E hooked up to loads of bits and was very poorly, they were giving him dose upon dose in the nebulizer and nothing was working.
he was looking really poorly and we had to wait for them to take a xray of his chest… (the x-ray people came to him)

Tuesday Night in A & E waiting for bed in HDU

Tuesday Night in A & E waiting for bed in intensive care

 

We were told that he would have to be admitted to intensive care but there was no space at the moment,  So for the time being he was going to be put in HDU on penguin ward (children’s) at Medway hospital.  So he was moved up there and straight away they decided that after 12 lots of medication put in the nebuliser back to back,  it wasn’t working so they hooked him up to two drips, Allan went home around 3am as he had to come home and get some sleep and be there to get Alex up for school the next day plus he had to go out and get some of the important cardboard bits done in the scout van.  I stayed with Ali and the consultant came around about 6am and explained that Ali had been very tacicocardic and his heart rate was still very high, He was also concerned about the amount of steroids Ali had now received and it still wasn’t helping, he tried finding a bed in Intensive care but there was still no space so he decided that Ali would have to stay on HDU.  He told me that the next few hours were crucial and that Ali was very  very seriously ill.

Wednesday:
By 9am Ali was awake and starting to look a bit better.. well to me anyway.. he wanted a sip of water which the nurse gave him and he immediately threw it up …..  every hour they tried with just 20mls of water and each time it came up again… this was probably because of all the medication.. Ali was still on oxygen all the time and then the nebulizer every hour but he was starting to get bored just lying there..
So they turned on the what he called Lego man tv and put children’s programs on… He was not impressed to say the least lol good job I had his ds in my bag so he played on that…  by Wednesday evening they moved him to the ward and they had got him on 4 hourly nebulizer and off the oxygen and drips and told us that if he was ok through the night Wednesday he could go onto the inhalers on Thursday and if that was ok he may go home once he was stable.   So As I had done the night shift with him Tuesday Night Allan stayed Wednesday Night, He had the good shift as the ward had room for a Z  bed down the side of Ali’s for Allan to lie on they even used cylinder oxygen for Ali so not to disturb Allan when they did his obs and medicine.

Thursday:
After getting a relatively good night sleep at home, I got a call from Allan to say the consultant had been around and that Ali was improving well and they were going to start the inhaler early on him.  So they used a spacer and he had to have ten hits of his ventolin at a time every two hours and then extend it to every 4 hours..  and had his Prednisolone   If he was ok he could go home either Thursday night or Friday.. So I went shopping and picked up some bits just in case he did have to stay the night again as it would be my shift again.  But when I got to the hospital he was looking ten times better than when I had left him the night before.

If fact if anything he was bouncing off the walls….. and bored….. bored … bored…
Thankfully the medication worked a treat and in the evening they said we could take him home provided he took his medication every 4 hours and took his Prednisolone every day and we kept him in from playtime at school and pe for the first week he could go back to school on Monday.
As we were leaving a doctor came to sign the discharge forms and sort out his prescriptions for stuff he will need to take and turned to me and said…

He (Ali) has done remarkable considering we were close to losing him the other night………. 
I’m so glad they didn’t tell me that at the time !!!

So everyday there was a rapid change… What a difference 24 hours makes.

And Now… Now is Saturday… I have Shelby up in bed for her nap (my lovely little weekend visitor from Friday till Monday ) I am sat here at my pc and Alex and Ali are on the Xbox playing Minecraft……… 

Normal service has been resumed!

Tuesday Night to Thursday Night......

Tuesday Night to Thursday Night……